Join our Volunteer Registry To join the research registry, please share your name and contact information in the boxes below. You can also mark the types of studies you are most interested in, such as sleep disorders, cancer, mental health, allergies, or studies for healthy volunteers. Some University of Rochester studies can be done from home or offer remote options, so you may not need to travel to Rochester, NY. Some studies may offer payment for your time and travel.
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Are you interested in studies that someone else might be eligible for? (e.g. for a child; a parent or friend).
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Yes
No
Checking yes will allow you to enter the other person's details but your contact information.
Female
Male
Not Listed
M-D-Y
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Ethnicity
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Hispanic or Latino
Not Hispanic or Latino
Prefer not to Answer
The option " " can only be selected by itself. Selecting this option will clear your previous selections for this checkbox field. Are you sure?
Select all that apply
First Name
Middle Initial
Last Name
Suffix
First Name
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Last Name
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Preferred Contact Method
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Email
Mail
Telephone
You have selected mail as your preferred contact method; address is required.
Alabama Alaska Arizona Arkansas California Colorado Connecticut Delaware Florida Georgia Hawaii Idaho Illinois Indiana Iowa Kansas Kentucky Louisiana Maine Maryland Massachusetts Michigan Minnesota Mississippi Missouri Montana Nebraska Nevada New Hampshire New Jersey New Mexico New York North Carolina North Dakota Ohio Oklahoma Oregon Pennsylvania Rhode Island South Carolina South Dakota Tennessee Texas Utah Vermont Virginia Washington West Virginia Wisconsin Wyoming District of Columbia Guam Marshall Islands Northern Mariana Island Puerto Rico Virgin Islands
Zipcode
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Primary Email
Alternate Email
You have selected email as your preferred contact method; primary email is required.
You have selected phone as your preferred contact method; primary phone is required.
Cell Home Work
Do we have permission to contact you by text message about future research opportunities?
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Yes
No
Cell Home Work
Do we have permission to contact you by text message about future research opportunities?
* must provide value
Yes
No
Primary Language Used
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English
ASL
Spanish
Other
Healthy Volunteer
COVID-19/Coronavirus
Allergies
Blood Draw Only
Bones, Joints, and Muscles Examples: Arthritis, Chronic Pain
Brain and Nervous System Examples: Parkinson's Disease, Alzheimer's, Dementia, Migraines
Cancer (Patients and their caregivers)
Kids, Infants, and Newborns Examples: ADHD, Autism, Intellectually and Developmentally Disabled, Family Dynamics
Stomach, Bowels, Colon
Ear, Nose, and Throat
Endocrine System Examples: Diabetes, Thyroid Disease, Hormone Disorders
Eyes and Vision
Food, Nutrition, and Metabolism Examples: Eating Disorders, Obesity
Blood, Heart, and Circulation
Immune System/Infections Examples: HIV, RSV, Influenza
Kidney and Bladder
Lungs and Breathing Examples: COPD, Cystic Fibrosis, Asthma
Mental Health and Behavior Examples: Depression, Schizophrenia
Mouth and Teeth
Rare Diseases
Reproductive and Sexual Health Examples: Erectile Disfunction, Menopause, Pregnancy
Skin, Hair, and Nails Examples: Dermatitis, Eczema
Sleep Disorders Examples: Sleep Apnea, Insomnia
Substance Abuse and Smoking
Wellness and Lifestyles Examples: Loneliness, Relationships, Exercise
Optional: Please specify any other conditions of interest that are not listed above
Are you a healthcare provider?
Yes
No
Do you live in the same household as a person with COVID-19 symptoms or who had COVID-19 symptoms in the past?
Yes
No
Have you been diagnosed with a COVID-19 illness?
Yes
No
Have you tested positive or negative for COVID-19 (i.e. nasal swab was collected)?
Yes
No
Have you tested positive or negative for COVID-19 antibodies using blood from a fingerprick or collected from a vein?
Yes
No
Do you currently have any COVID-19 symptoms (fever, cough, shortness of breath, body aches or loss of sense of smell)?
Yes
No
Do you smoke or use vaping products?
Yes
No
Do you have heart disease, high blood tension, chronic lung disease or asthma?
Yes
No
Do you take immunosuppressive medications such as steroids, chemotherapy, transplant rejection medications, biologics?
Yes
No
Have you received a COVID-19 vaccine?
Yes
No
Yes
No
I agree to have my name included in a registry of individuals interested in being contacted about future research studies. I understand that I may be contacted in the future by phone or email, or mail about taking part in a University of Rochester-approved research study, and that if contacted, I can decide at that time whether I want to participate in the research study. I understand that being included in the registry does not require that I participate in the research study. I agree for the University of Rochester to store the following information: my name, Date of Birth, gender, phone number (home and/or cell), postal address and e-mail address.
My permission to use my health information for this study will not expire unless I tell you to cancel it. My records will be handled as confidentially as possible and stored in protected data files. I understand that the University of Rochester will store my information indefinitely and that it will only be shared with individuals who have approved research studies.
I understand that I will receive a newsletter that includes educational information about research, findings of previous studies conducted by the University of Rochester. I understand that Maestro, a third-party software that is approved by the University of Rochester and HIPAA-compliant will be used to send the newsletter. I understand that I may receive an email on my birthday and the anniversary of my registration. If I wish to be removed from the registry, I may contact the Research Help Desk by phone at 585-275-2107 or by email at healthresearch@urmc.rochester.edu .
If you have any additional questions, would like more information about this registry, or if you feel that taking part in the registry may have resulted in any discomfort, you can talk with Carrie Dykes at (585) 275-0736. If you wish to talk to someone other than the research staff about your rights as registry participant, to voice concerns (anonymously, if you wish), or in the event registry staff could not be reached, you may contact the Office for Human Subject Protection, by using this Feedback Form .
Current Status
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Active
Inactive
Reason for Status Update
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Duplicate Entry
No Longer Interested in Participating
Death
Inactive Email Address & No Other Contact Information
Returning to Active Status
Turned 18
Subscription status for primary email ______ :
Subscribed
Unsubscribed
Subscription status for alternate email ______ :
Subscribed
Unsubscribed