Knowledge of Pelvic Floor Disorders in Women Who Are Deaf or Hard of Hearing: A Pilot Study |
This information sheet describes a research study that is being conducted by Joseph Panza from the University of Rochester Medical Center's Obstetrics & Gynecology Department with collaboration from the Deaf Health Lab at Rochester Institute of Technology, Directed by Dr. Tiffany Panko.
The purpose of this study is to learn about urinary incontinence (UI) and pelvic organ prolapse (POP) knowledge among women in the Deaf Community. This study is intended to improve patient care by providing data to suggest possible need for education and removal of barriers to care for patients who are Deaf or Hard of Hearing with the above pelvic floor disorders.
If you decide to take part in this study, you will be asked to complete this one-time survey that will take approximately 20 minutes, depending on how quickly you answer the questions. The survey will ask questions about your demographics and your experience and knowledge regarding UI and POP.
There is minimal risk involved in this study. Some of the survey questions may be upsetting or make you feel uncomfortable. You can skip any of the questions you do not want to answer or stop the survey at any time. All of the information we collect will be stored in a secure manner and only study team members will have access to it. The data in the survey will be anonymous. There are no other expected risks. There are also no expected benefits. You will not be paid for participating in this study. There will be no cost to you to participate in this study.
The University of Rochester makes every effort to keep the information collected from you private. In order to do so, we will not collect any identifiable information. Only members of the research team will be able to access this information in a password-protected file, which is HIPPA compliant. Results of the research may be presented at conference meetings and in publications, but your name will not be used. We will keep the survey results indefinitely.
Your participation in this study is completely voluntary. You are free not to participate or to withdraw at any time, for whatever reason. No matter what decision you make, there will be no penalty or loss of benefits to which you are otherwise entitled. If you would like to continue please click submit below and you will be taken to the survey.
For more information or questions about this research, you may email Joseph Panza, MD at joseph_panza@urmc.rochester.edu
Please contact the University of Rochester Research Subjects Review Board at 265 Crittenden Blvd., CU 420628, Rochester, NY 14642, Telephone (585) 276-0005 or (877) 449-4441 for the following reasons:
• You wish to talk to someone other than the research staff about your rights as a research subject;
• To voice concerns about the research;
• To provide input concerning the research process;
• In the event the study staff could not be reached.
Please complete the survey by clicking submit below.
Thank you!