NYS Health and Human Services Network, Component B

Organization level needs assessment for technical assistance and capacity building

You are invited to complete the second round of an organizational equity survey conducted by the University of Rochester's (UR) LGBTQ+ Health Initiative. We want to publish deidentified summary results from the survey and therefore have turned the "survey" you completed in 2020 into a "study" this time.

This form describes a quality improvement study that is being conducted by Brooke A. Levandowski, PhD, MPA from the University of Rochester's Department of Obstetrics and Gynecology and the LGBTQ+ Health Initiative. The University of Rochester is receiving payment from the New York State Department of Health AIDS Institute for conducting this study.

The purpose of this survey is to help us understand your organization's current and emerging educational, training, and capacity-building needs surrounding LGBQ (lesbian, gay, bisexual, queer), TGNCNB (transgender, gender non-conforming, nonbinary), and racial equity.

We define equity as "the state, quality or ideal of being just, impartial and fair" (AECF.org). We use the terms cultural competency and cultural humility in this questionnaire to mean "a set of congruent behaviors, attitudes, and policies that come together in a system, agency, or among professionals that enables effective work in cross-cultural situations. 'Culture' refers to integrated patterns of human behavior that include the language, thoughts, communications, actions, customs, beliefs, values, and institutions of racial, ethnic, religious, or social groups. 'Competence' implies having the capacity to function effectively as an individual and an organization within the context of the cultural beliefs, behaviors, and needs presented by consumers and their communities" (npin.cdc.gov).

Please note that we divided up these groups of sexual orientation, gender identity and race separately, to identify missing opportunities for equity. We appreciate that this division does not recognize the intersectional lives we lead. In addition, we recognize this survey does not include questions about disability and other ways our community is marginalized and stigmatized.

We are asking you to provide information on your organization's principles, policies, and practices that support cultural responsiveness, and potentially identify areas for greater equity. This survey may be filled out by one or more people at your organization, with the goal for each organization to submit at least two surveys - one from a person in leadership and another from a staff member. Please answer this survey from the perspective of the organization, not from a program funded within the larger organization.

There are no expected benefits to you for participating in this study. The risks to you for participating in this study are minimal. Some of the survey questions may be upsetting or make you feel uncomfortable. You can skip any of the questions you do not want to answer. There is a small risk of a breach of confidentiality if surveys are connected to the individuals who completed them. To mitigate this risk, we are not collecting information that would identify you, and all of your answers are anonymous. We are collecting your organization's name to capture information on whether or not there is a need for regional training. Your responses will be combined with those of others into a summary score for organizations and regions. Evaluation and publication of responses across all of the organizations that participate in this survey will only be in summary form, and no individuals or settings will be identified.

We will make every effort to keep the information collected from you private. In order to do so, we will store all of the data we collect in password-protected devices and applications.

There are four sections to this survey. The first section is a group of questions which have a variety of different answer choices. The second section has a group of questions in which you choose where your organization fits on the range, from "not yet thinking about this" to "this is entrenched across the organization." The third section is a group of questions that has responses among four levels, and you choose where your organization falls among the range. The last section has a checklist of cultural competency indicators, divided into five groups. This information will be used to update the Organizational Priority Reports and background data to continue to create and offer technical assistance and capacity building to support organizations' needs.

If you decide to take part in this study, you will be asked to complete 1 survey that will take about 40 minutes to complete. We estimate that approximately 70 people who are employed at organizations funded by the NYS DOH AIDS Institute will take part in this survey. Additionally, we estimate that 100 clients from these organizations will complete a separate survey about their experiences of care at these organizations, for a total of 170 participants in the study as a whole.  You will be able to download your responses after completing the survey. You are also able to save an incomplete survey and return to the survey at a later time.

Your participation in this study is completely voluntary. You are free not to participate or to leave questions blank, for whatever reason.

Taking part in this research is not a part of your work-related duties, and refusing to participate will not affect your job. You will not be offered or receive any special job-related consideration if you take part in this research. You will not be paid for participating in this study, and there will be no cost to you for participating in this study.

For more information or questions about this research you may email us at lgbtqplus_health@urmc.rochester.edu. Please contact the University of Rochester Research Subjects Review Board at 265 Crittenden Blvd., CU 420628, Rochester, NY 14642, Telephone (585) 276-0005 or (877) 449-4441 for the following reasons:

  • You wish to talk to someone other than the research staff about your rights as a research subject;
  • To voice concerns about the research;
  • To provide input concerning the research process;
  • In the event the study staff could not be reached.

Your participation is greatly appreciated. Thank you!

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